Begoña Nafria Escalera
Jefe de Grupo
Research group
Begonya Nafria has long experience in the field of patient and family participation in research initiatives. Her personal history as a caregiver for an adult with cerebral palsy has linked her to various projects and initiatives in the field of defending patients' rights.
Her areas of expertise focus on the participation of paediatric patients in research and specifically in the field of clinical trials.
Relevant aspects of hes curriculum are: CIBERER collaborator, EUPATI member, eYPAGnet Coordinator, Kids Barcelona Coordinator (YPAG of Hospital Sant Joan de Déu), member of the EFGCP Children's Medicines working group and member of the working group of patients and families of EnprEMA (European Network for Pediatric Research of EMA).
She is also a reviewer for various journals specialized in the subject of patient participation in research and rare diseases, and a teacher in seminars, courses and conferences.
Last Publications
- Catalá-López F, Ganuza E, Alonso-Arroyo A, Perna R, Tricco AC, Hutton B, Colin C, Tejedor-Romero L, Ridao M, Bautista-Puig N, Tabarés-Seisdedos R, Aleixandre-Benavent R, Nafria-Escalera B, Staniszewska S and Moher D Assessing the impact, uptake and use of reporting guidelines for patient and public involvement in research: GRIPP2-study protocol for a meta-research project BMJ Open . 16(4): .
- Baba A, Smith M, Potter BK, Chan AW, Moher D, Toulany A, Doherty-Kirby A, Nafria-Escalera B, Stratton C, Gale C, Macarthur C, Purper-Ouakil D, Juszczak E, Cohen E, Reggiardo G, Preston J, Cohen JF, Upton J, Allegaert K, Boerner K, Mehta K, Nguyen KA, Courtney K, Hartling L, Konstantinidis M, Odermarsky M, Butcher NJ, Kolehmainen N, Longmuir PE, Gill PJ, Leroy P, Feneberg R, Poluru R, Morris SK, Friedrichsdorf SJ, Chute Nagy T, Klassen TP, Lacaze-Masmonteil T, Onland W and Offringa M SPIRIT-Children and Adolescents (SPIRIT-C) 2026 Extension Statement JAMA Pediatrics . 180(4): 426-439.
- Catalá-López F, Ganuza E, Colin C, Perna R, Hutton B, Nafria-Escalera B, Alonso-Arroyo A, Tejedor-Romero L, Turrini M, Sandonís-Camarero D, Lucas-Domínguez R, Ridao M, C Tricco A, Staniszewska S and Moher D Patient and public involvement in health technology assessments: study protocol for a cross-sectional analysis Gaceta Sanitaria . 40: 102591-102591.
Projects
- Project name:
- READI_Research in Europe and Diversity Inclusion
- Leader
- Begoña Nafria Escalera
- Funding entities:
- European Commission
- Code
- 101166227
- Starting - finishing date:
- 2025 - 2030
- Project name:
- YARN: European Youth Cancer Network
- Leader
- Begoña Nafria Escalera, Esther Lasheras Soria
- Funding entities:
- European Commission
- Code
- 101219053
- Starting - finishing date:
- 2025 - 2028
- Project name:
- Fortaleciendo el conocimiento infantil sobre los MMR y la prevención de su propagación
- Leader
- Begoña Nafria Escalera
- Funding entities:
- Pfizer, S.L.U.
- Code
- PCP00488
- Starting - finishing date:
- 2025 - 2026
News
-
Psychosis research reaches educational centers
The Patient Engagement in Research Area of the Institut de Recerca Sant Joan de Déu (IRSJD) has launched an educational initiative aimed at 3rd and 4th year ESO students to address mental health, contribute to the reduction of prejudices and stigmas, and promote the recognition of risk factors associated with psychotic disorders, also promoting early detection and prevention in the face of any warning signs.
-
Sant Joan de Déu launches a new interactive games space to bring research closer to patients and families
The initiative, called "Play and learn about research", is located in the main lobby of the Hospital and combines puzzles, educational videos and scientific discoveries.
More activities
-
Share4Rare | Investigación colaborativa en salud mental en enfermedades raras
Auditorio Plaza · HSJD
