Publicaciones
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Popenhagen, Mark P., Genovese, Paola, Blishen, Mo, Rajapakse, Dilini, Diem, Anja, King, Alex, Chan, Jennifer, Pellicer E, Baird, Simone, Ferreira da Rocha, Anna Carolina, Stitt, Gideon, Badger, Kellie, Zmazek, Vlasta, Ambreen, Faiza, Mackenzie, Caroline, Price, Harper, Roberts, Toni, Moore, Zena, Patton, Declan, Murphy, Paul and Mayre-Chilton, Kattya.
Consensus-based guidelines for the provision of palliative and end-of-life care for people living with epidermolysis bullosa
ORPHANET JOURNAL OF RARE DISEASES . 18(1): . Nº de citas: 3
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Claudia Solito, Plaza-Luna L, Navarro L and Navarro S.
Implicaciones clínicas de la retirada de alimentación e hidratación artificial en pacientes pediátricos en el final de vida
Medicina Paliativa . 30(1): 11-17.
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Toro D, Camprodon-Rosanas E, Navarro S, Clemente I and Limonero JT.
Desarrollo de la entrevista ESNA: un instrumento para evaluar el sufrimiento en niños y adolescentes con enfermedades graves y necesidades paliativas
Psicooncologia . 20(1): .
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Amato, ME, Ricart S, Vicente-Villa MA, Martorell-Sampol L, Armstrong-Moron J, Fernandez-Isern G, Mascaro, JM, Balsells S, Alonso, I, Serrano M and Ortigoza-Escobar JD.
Coexistence of junctional epidermolysis bullosa, autosomal recessive deafness type 57, and Angelman syndrome: A case report
clinical case reports . 11(4): . Nº de citas: 1
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Toro D, Camprodon-Rosanas E, Navarro S, Bolance, C, Guillen, M and Limonero, JT.
Assessing well-being in pediatric palliative care: A pilot study about views of children, parents and health professionals
PALLIATIVE & SUPPORTIVE CARE . 22(5): 1-9. Nº de citas: 3
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de la Vega, R, Serrano-Ibáñez, ER, Ruiz-Párraga, GT, Palermo, TM, Wicksell, R, Fernández-Jiménez, E, Oliva, S, Roldán, S, Monfort L, Peláez, MJ, Carmona, ML, Ramírez-Maestre, C, López-Martínez, AE, Miró, J and Esteve, R.
Protocol for a multi-phase, multi-center, real-world, hybrid effectiveness-implementation study of a digital intervention for pediatric chronic pain co-designed with patients (Digital SPA)
Digital Health . 9: . Nº de citas: 1